We Advocate for Families in NICU

Every parent deserves to be given the knowledge, confidence, and support to advocate for their baby in the NICU. Through education, guidance, and practical tips, we help families feel empowered during this critical time.

Be Proactive. Educate Yourself. Protect Your Baby.

Here’s what to do if you find yourself in the NICU for signs and symptoms of NEC: 

  • 1. Ask Questions About Every Procedure and Treatment

    No question is too small. Understanding each step of your baby’s care helps you feel informed and confident.

  • 2. Request Clear Explanations About Your Baby’s Diagnosis

    Ask for information in plain language. It’s your right to know what’s happening and why.

  • 3. Take Notes, and/or Record Important Conversations (With Permission)

    Keep track of medical updates, instructions, and questions so you can review them later and share with family members.

  • 4. Request Your Baby’s Baseline Vitals and Progress Daily

    Understanding your baby’s normal readings helps you notice changes and communicate effectively with the care team.

  • 5. Speak Up if You Notice Changes in Your Baby’s Condition

    You know your baby best. Share observations promptly — even small differences can be important.

  • 6. Understand the Risks, Benefits, and Alternatives for Treatments

    Ask your care team about options, potential outcomes, and why a treatment is recommended to make informed decisions.

  • 7. Build Relationships With Your Care Team

    Nurses, doctors, and specialists are your partners. Strong communication helps your baby receive consistent, compassionate care.

  • 8. Document Your Baby’s Care Across Shifts

    Keep a record of feeding times, medications, and procedures to ensure continuity and accuracy in care.

  • 9. Ask for Resources on NEC and NICU Best Practices

    Educational materials empower you to make informed choices and understand the condition affecting your baby.

  • 10. Connect With Parent Support Networks

    Other parents who’ve been in the NICU can offer guidance, encouragement, and hope during this emotional journey. Join our Facebook group.  

Request a Family Care Basket

Our Family Care Baskets provide comfort and essential items to families during a NICU stay. Each basket includes a blanket, snacks, gift/gas cards, snacks, water bottles, and more to help families focus on their baby. If you need care, please fill out the form below to request a basket. 




Note: While we do our very best to support every family who reaches out, basket availability can vary. Please know we will review each request with care and will reach out as soon as we’re able.

Get Prayer, Find Support. Join Our Community.

Connect with other families who understand the challenges of a NICU journey and NEC diagnosis. Share your story, receive encouragement, and find strength together in a community that cares for your journey.

Share Your Story

We believe that hope has the power to shift outcomes. Your story can inspire, comfort, and offer hope to those navigating the NICU journey with a NEC diagnosis. Help us build a community of hope and encouragement, and show other families they are not alone in their journey.

Get Involved: Volunteer

Volunteering is a hands-on way to support families during one of the most challenging times of their lives. Whether you help assemble Family Care Baskets, deliver them to local NICUs, or assist at events, your time and care make a difference. Fill out the form below to join our volunteer team: